Tube Weaning: Week Four

We're still going.... Day 22 I woke up to a response from the feeding school about the videos I sent them of him eating. One of him munching chocolate cake and another of him clearly showing interest, hunger and a desire to eat but everything that went in, coming out. The response agreed with my …

Continue reading Tube Weaning: Week Four


Tube Weaning: Week Two

Day 8 Starting to feel like he's never going to eat! I reason with myself 'Isn't this what babies do when they first wean? Don't they spit it out too? Doesn't it just take time to get them swallowing?' The difference of course, that babies had already been swallowing milk and would still get their …

Continue reading Tube Weaning: Week Two

Tube Weaning: Day One

I'm pleasantly surprised, though hesitant to get excited naturally. Mid morning I received a message from the feeding school with a suggested new regime to start the process. I looked it over and noticed lunch and dinner reduced with a short amount of dinner and the same for his overnight feeds. It wasn't what I …

Continue reading Tube Weaning: Day One


The Pros and Cons of tube feeding. Yes there are PROS!

Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven't hid it, I've haven't not posted his beautiful face because there's a tube stuck to it. I haven't saved feeding times for private spaces away from prying eyes. I'm a loud and proud mama to a tubie! …

Continue reading The Pros and Cons of tube feeding. Yes there are PROS!

“Why does Jaxon have a tube down his nose?”

Firstly, it's a Nasogastric tube also known as a NG tube. It goes up his nose, down his throat and ends in his stomach. It is for his milk and medications. For general information on feeding difficulties see NHS Dysphagia. This link explains general swallowing problems in both adults and children, causes and treatment. Everyone with …

Continue reading “Why does Jaxon have a tube down his nose?”